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  • Home
  • About Us
    • About Us
    • News
    • Archives
    • Contact Us
  • Patient Stories
    • Patient Stories
    • Amazing Amelia
  • Helpful Links
    • Helpful Links
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    • Family Support
    • Anomalies Clinics
  • Members photo album
  • FAQ
    • FAQ LM
    • FAQ VM
    • FAQ AVM

2025

RARE DISEASE DAY 2025

To get involved, download materials and stay up to date with the latest internationally, click on the link below.

learn more

2024

royal children’s hospital, melbourne. christmas appeal 2024

Sammi has a rare Lymphatic Malformation called kaposiform Lymphangiomatosis.

Sammi's parents Alex and Mark recount their journey through challenging and heartbreaking moments, as well as the incredible resilience and recovery that Sammi has shown. 

TRIGGER WARNING:

There are images of Sammi ventilated in ICU as well as talk about child and infant loss.


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Vascular & Lymphatic Malformation Network - All Rights Reserved.

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