nEWS
Dr David lord & AVM survivor Ella Jay
In this interview, Dr Lord speaks with his long-term patient, Ella, who lives with an extensive pelvic arteriovenous malformation (AVM).
Their conversation offers a meaningful insight into his remarkable knowledge, professionalism and compassionate approach to care.
Dr Lord is the first Australian recipient of the Society of Paediatric Interventional Radiology Gold Medal.
Congratulations Dr David Lord
LYMPHATIC MALFORMations & complex lymphatic anomalies
Lymphatic Malformation Alliance
The Lymphatic Malformation Alliance (formerly known as LGDA) unites patients, families, clinicians and researchers to accelerate understanding, expand access to care and drive breakthroughs for isolated lymphatic malformations and complex lymphatic anomalies so no one faces this journey alone.
Click on below link for more information.
clinical trials 2025/26
Upcoming Clinical Trials in Australia for Lymphatic and Venous Malformations.
Hello, I wanted to share some exciting news regarding upcoming clinical trials in Australia that may be of interest to our community.
In the next few months, there will be two trials focusing on Apelisib for lymphatic malformations and PIK3CA-related overgrowth syndromes, as well as one trial investigating RLY-2608 for lymphatic and venous malformations. These studies are open to both children and adults.
If you or someone you know might be interested in participating, please feel free to reach out. I would be more than happy to provide additional information and discuss this further.
Thank you for your attention, and let’s continue to support each other in our journey.
To express interest please use e-mail below and attention it to A/Prof Deshan Sebaratnam
SWSLHD-LivDR@health.nsw.gov.au
video - november 2024
Dr David Lord talking about Interventional Radiology and the part it plays in the care and treatment of Vascular and Lymphatic Malformations.
vascular birthmark foundation
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