Hello, I wanted to share some exciting news regarding upcoming clinical trials in Australia that may be of interest to our community.
In the next few months, there will be two trials focusing on Apelisib for lymphatic malformations and PIK3CA-related overgrowth syndromes, as well as one trial investigating RLY-2608 for lymphatic and venous malformations. These studies are open to both children and adults.
If you or someone you know might be interested in participating, please feel free to reach out. I would be more than happy to provide additional information and discuss this further.
Thank you for your attention, and let’s continue to support each other in our journey.
To express interest please use e-mail below and attention it to A/Prof Deshan Sebaratnam
SWSLHD-LivDR@health.nsw.gov.au

Dr David Lord talking about Interventional Radiology and the part it plays in the care and treatment of Vascular and Lymphatic Malformations.
Sammi has a rare Lymphatic Malformation called kaposiform Lymphangiomatosis.
Sammi's parents Alex and Mark recount their journey through challenging and heartbreaking moments, as well as the incredible resilience and recovery that Sammi has shown.
TRIGGER WARNING:
There are images of Sammi ventilated in ICU as well as talk about child and infant loss.
To get involved, download materials and stay up to date with the latest internationally, click on the link below.

The funds raised support research efforts in collaboration with Great Ormond Street Hospital, University College of London, Royal Free Hospital and the Francis Crick Institute.
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